Overview
What is The Neuromuscular Disease Foundation?
The Neuromuscular Disease Foundation, situated in Beverly Hills, California, is a dedicated nonprofit organization that has been actively involved in promoting and funding research for genetic neuromuscular disorders and diseases since 2006. Their primary focus is on GNE Myopathy, also known as HIBM, where they have been instrumental in funding scientists, universities, and laboratories, leading to significant advancements in new study development. The foundation's mission is to improve the lives of individuals affected by these conditions through advocacy, education, outreach, and essential research funding aimed at finding treatments and a potential cure. With a team of five dedicated individuals, the Neuromuscular Disease Foundation continues to make strides in understanding and addressing neuromuscular diseases.
Official website here: www.curegnem.org
What do the Facebook reviews say about The Neuromuscular Disease Foundation?
100% of reviewers on Facebook recommend The Neuromuscular Disease Foundation, with a total of 9 reviews highlighting their positive experiences. Many users express their appreciation for the incredible efforts made by the organization in advancing research, particularly for individuals affected by GNE Myopathy.
People feel a strong sense of support and shared mission within the community, which fosters hope and optimism for future developments in treatments and awareness. The dedication of the foundation’s team has been noted as a significant factor in pushing forward initiatives that directly impact the lives of those dealing with this condition.
Overall, the sentiment surrounding the foundation is overwhelmingly positive, reflecting a deep gratitude for the work being undertaken and the meaningful connections it facilitates among those impacted by neuromuscular diseases.
This AI summary has been generated from reviews found on Facebook.
Is The Neuromuscular Disease Foundation legitimate?
The Neuromuscular Disease Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Neuromuscular Disease Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
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Official website here: www.curegnem.org
What is the mission statement of The Neuromuscular Disease Foundation?
The Neuromuscular Disease Foundation's mission is centered around enhancing the lives of individuals living with GNE Myopathy, also known as HIBM. They accomplish this through various strategies, including advocacy, education, outreach, and funding for influential research focused on treatments and a potential cure. The foundation has been actively seeking and financing clinical research projects related to GNE Myopathy since 2006. By supporting scientists, universities, and laboratories, they have contributed significantly to the development of new studies in the field.
Official website here: www.curegnem.org
Who is the CEO of The Neuromuscular Disease Foundation?
Ralph Loren is the Co-Chair of The Neuromuscular Disease Foundation.
Official website here: www.curegnem.org
What is the revenue of The Neuromuscular Disease Foundation?
The Neuromuscular Disease Foundation's revenue in 2022 was $442,823.
Official website here: www.curegnem.org
Who are the executives of The Neuromuscular Disease Foundation and what are their salaries?
There are 5 employees and 10 volunteers at The Neuromuscular Disease Foundation.
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Official website here: www.curegnem.org
Where can I find the form 990 for The Neuromuscular Disease Foundation?
The Neuromuscular Disease Foundation's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.curegnem.org
Learn more at the official website: www.curegnem.org
Mission Statement of The Neuromuscular Disease Foundation
The Neuromuscular Disease Foundation, abbreviated as NDF, is committed to improving the lives of individuals affected by genetic neuromuscular disorders and diseases. Their primary mission is to achieve this goal through advocacy, education, outreach, and by supporting critical research focused on treatments and a potential cure for GNE Myopathy, also known as HIBM.
In pursuit of their mission, NDF has been actively funding clinical research projects since 2006. They have been instrumental in supporting scientists, universities, and laboratories worldwide, contributing significantly to the understanding of GNE Myopathy and paving the way for new studies and potential treatments. This proactive approach to funding research has positioned NDF as a global leader in the field. Their efforts are aimed at enhancing the quality of life for people living with GNE Myopathy, providing hope for a future where treatments and even a cure may be possible.
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Impact
October, 2024
The Neuromuscular Disease Foundation (NDF) significantly impacts the landscape of genetic neuromuscular disorders through its dedicated efforts in clinical research and advocacy. Since its inception in 2006, NDF has actively sought and funded research projects aimed at understanding GNE Myopathy (also known as HIBM). By prioritizing funding for scientists, universities, and laboratories, NDF has established itself as a world leader in advancing knowledge and potential treatments for this debilitating condition.
The foundation's commitment extends beyond just research funding; it enhances the quality of life for individuals affected by GNE Myopathy through education, outreach, and advocacy. This multi-faceted approach ensures that the voices of those impacted are heard while also accelerating the development of therapies and cures. NDF’s efforts are critical not only in driving scientific inquiry but also in fostering a supportive community for patients and their families, ultimately leading to a better understanding of the disease and hope for future treatment advancements.
This information is meant to be a general summary of The Neuromuscular Disease Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $14,437
- Gross Receipts: $442,823
Assets and Liabilities:
- Total Assets: $886,359
- Total Liabilities: $1,713
- Net Assets: $884,646
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Organization Details
Founding Year
2006
Phone
(310) 721-1605Principal Officer
Ralph Loren
Main Address
269 South Beverly Drive 1206, Beverly Hills, CA, 90212
Website
www.curegnem.orgNTEE Category
Code: G12 - Disease
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