Overview
What is Friends Of Essential Thrombocythemia Inc?
Friends of Essential Thrombocythemia Inc, operating under the name Friends of ET Research, is a nonprofit organization committed to addressing a lesser-known yet significant health issue: Essential Thrombocythemia, a rare bone marrow disease. Recognizing the limited attention given to "orphan diseases" by researchers and scientists, this organization has made it its mission to fund essential research in this field. They accomplish this by organizing annual appeals to raise funds, which are then allocated to qualified research centers for conducting scientific studies. The ultimate goal is to advance our understanding and treatment options for individuals affected by Essential Thrombocythemia.
Official website here: www.fofetr.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: Not Available
Friends Of Essential Thrombocythemia Inc is recognized for its commitment to raising awareness and funding research for Essential Thrombocythemia (ET) and other myeloproliferative neoplasms (MPNs). User reviews indicate a high level of satisfaction, with many praising the organization for its effectiveness in educating the public and advocating for resources necessary to combat these rare diseases. The organization has successfully raised significant funds, with reports of $750,000 directed towards research initiatives since its founding in 1999.
The nonprofit is commended for its active engagement on social media platforms like Facebook, where it disseminates valuable information regarding MPNs. Members of the public have expressed their gratitude for the knowledge gained through the organization, which they find invaluable in navigating the complexities of these conditions. The personal connection of founders and board members to the disease has fostered a passionate and dedicated atmosphere within the organization, enhancing its credibility.
However, while user feedback is overwhelmingly positive, there may be ongoing challenges in securing sufficient resources and awareness for research into ET, as noted by reviewers. The organization continues to rely on donations and community support to further its mission, highlighting an ongoing need for increased advocacy and funding in the fight against these rare diseases.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Friends Of Essential Thrombocythemia Inc legitimate?
Friends Of Essential Thrombocythemia Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Friends Of Essential Thrombocythemia Inc submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Official website here: www.fofetr.org
What is the mission statement of Friends Of Essential Thrombocythemia Inc?
Friends of Essential Thrombocythemia Inc, operating under the name Friends of ET Research, is a non-profit organization with a mission to address a relatively neglected medical condition. This condition, known as Essential Thrombocythemia, is considered an "orphan disease," as it receives limited attention from researchers and scientists. The organization's primary goal is to raise funds for scientific research into this rare bone marrow disease. To accomplish this, they conduct annual fundraising appeals. The collected funds are then allocated to qualified research centers to further advance our understanding and potential treatments for Essential Thrombocythemia.
Official website here: www.fofetr.org
Who is the CEO of Friends Of Essential Thrombocythemia Inc?
Unavailable
Official website here: www.fofetr.org
What is the revenue of Friends Of Essential Thrombocythemia Inc?
Friends Of Essential Thrombocythemia Inc's revenue in 2022 was $35,922.
Official website here: www.fofetr.org
Who are the executives of Friends Of Essential Thrombocythemia Inc and what are their salaries?
Here are 4 key members and their salaries:
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Official website here: www.fofetr.org
Where can I find the form 990EZ for Friends Of Essential Thrombocythemia Inc?
Friends Of Essential Thrombocythemia Inc's most recent form 990EZ was submitted in 2022 and can be accessed here.
Official website here: www.fofetr.org
Learn more at the official website: www.fofetr.org
Mission Statement of Friends Of Essential Thrombocythemia Inc
Friends of Essential Thrombocythemia Inc., doing business as Friends of ET Research, is a non-profit organization with a mission to support research into a rare bone marrow disease known as Essential Thrombocythemia. Often referred to as an "orphan disease," Essential Thrombocythemia receives minimal attention from researchers and scientists. Recognizing this gap, Friends of ET Research has made it its mission to raise funds for scientific research in this area. The organization fulfills this mission by conducting annual appeals to collect funds, which are then distributed to qualified research centers. These centers utilize the funds to conduct groundbreaking research aimed at advancing our understanding and potential treatments for Essential Thrombocythemia. In summary, Friends of Essential Thrombocythemia Inc. is a dedicated non-profit organization that plays a vital role in funding research for a lesser-known bone marrow disease, aiming to contribute to the scientific community's understanding and eventual treatment options.
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Impact
August, 2024
Friends Of Essential Thrombocythemia Inc Dba Friends Of Et Research's impact lies in its dedication to raising funds for Essential Thrombocythemia, a rare bone marrow disease often overlooked by researchers and scientists. By raising money through annual appeals and distributing these funds to qualified research centers, the organization plays a crucial role in supporting scientific research aimed at advancing the understanding and treatment of this orphan disease. Through its efforts, Friends Of Et Research is helping to shine a light on Essential Thrombocythemia and drive progress towards improved outcomes for individuals affected by this condition.
This information is meant to be a general summary of Friends Of Essential Thrombocythemia Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Gross Receipts: $35,922
Assets and Liabilities:
- Total Assets: $1,400
- Total Liabilities: $0
- Net Assets: $1,400
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Organization Details
Phone
(561) 253-8061Main Address
10445 Terra Lago DR, West Palm Beach, FL, 33412
Website
www.fofetr.orgNTEE Category
Code: G12 - Disease
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