Overview
What is Cornelia De Lange Syndrome Foundation?
The Cornelia De Lange Syndrome Foundation is a family-focused nonprofit organization, headquartered unspecified, committed to facilitating early and precise diagnoses of Cornelia de Lange Syndrome (CdLS). They actively promote research into the underlying causes and various manifestations of this syndrome. Their mission extends beyond diagnosis, providing guidance and support to individuals diagnosed with CdLS and those exhibiting similar characteristics, enabling them to make informed decisions throughout their lives. The foundation also engages in professional education outreach, raising public awareness, and disseminating essential information about CdLS.
Official website here: www.cdlsusa.org
What do the Facebook reviews say about Cornelia De Lange Syndrome Foundation?
92% of 51 reviewers on Facebook recommend the Cornelia De Lange Syndrome Foundation. Here is a summary of their reviews:
The majority of respondents express gratitude for the informative resources provided by the foundation. Many reviewers appreciate the educational support that helps families better understand Cornelia De Lange Syndrome and its implications. This access to reliable information appears to be a significant benefit for those seeking guidance and reassurance.
Overall, the organization is recognized for its commitment to assisting families affected by this syndrome. Reviewers feel supported and informed, which contributes positively to their experience with the foundation.
This AI summary has been generated from reviews found on Facebook.
Is Cornelia De Lange Syndrome Foundation legitimate?
Cornelia De Lange Syndrome Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Cornelia De Lange Syndrome Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $116,737
Professional Fundraising Fees: $0
Other Salaries and Wages: $492,695
For more financial information, click here
Official website here: www.cdlsusa.org
What is the mission statement of Cornelia De Lange Syndrome Foundation?
The Cornelia De Lange Syndrome Foundation serves as a family support organization, dedicated to facilitating early and precise diagnosis of the condition. Their primary goal is to advance research into the causes and various manifestations of the syndrome. The organization aims to assist individuals diagnosed with Cornelia De Lange Syndrome, as well as those with similar characteristics, in making informed decisions throughout their lives. Furthermore, the foundation engages in professional education outreach and public awareness campaigns, providing essential information and resources to the wider community.
Official website here: www.cdlsusa.org
What is the revenue of Cornelia De Lange Syndrome Foundation?
Cornelia De Lange Syndrome Foundation's revenue in 2023 was $945,606.
Official website here: www.cdlsusa.org
Who are the executives of Cornelia De Lange Syndrome Foundation and what are their salaries?
The average compensation at Cornelia De Lange Syndrome Foundation during 2023 was $46,879. There are 13 employees and 250 volunteers at Cornelia De Lange Syndrome Foundation.
Here are 14 key members and their salaries:
- Compensation: $116,737
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- Compensation: $13,500
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Official website here: www.cdlsusa.org
Where can I find the form 990 for Cornelia De Lange Syndrome Foundation?
Cornelia De Lange Syndrome Foundation's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.cdlsusa.org
Learn more at the official website: www.cdlsusa.org
Mission Statement of Cornelia De Lange Syndrome Foundation
The Cornelia De Lange Syndrome Foundation serves as a family support organization, dedicated to facilitating early and precise diagnosis of Cornelia De Lange Syndrome (CdLS). Its mission extends beyond diagnosis, as it also aims to advance research into the underlying causes and manifestations of this syndrome. The organization's primary objective is to empower individuals diagnosed with CdLS and those exhibiting similar characteristics, enabling them to make well-informed decisions throughout their lives. To achieve this, the Cornelia De Lange Syndrome Foundation provides professional education, public awareness, and disseminates relevant information, thereby promoting understanding and support for those affected by this condition.
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Impact
October, 2024
The Cornelia De Lange Syndrome Foundation plays a crucial role in enhancing the lives of individuals affected by CdLS and their families. By ensuring early and accurate diagnosis, the organization helps families navigate the challenges associated with the syndrome, empowering them to make informed decisions about healthcare and support.
Through its commitment to advancing research, the Foundation fosters a deeper understanding of CdLS, contributing to better treatment options and resources. Educational outreach initiatives raise awareness about the condition, providing valuable information to both medical professionals and the public. This comprehensive approach not only supports individuals with CdLS but also strengthens the community around them, offering solidarity and understanding to those affected.
Overall, the Foundation's efforts create a more informed, supportive environment for families, leading to improved quality of life for individuals with CdLS.
This information is meant to be a general summary of Cornelia De Lange Syndrome Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $49,050
- Gross Receipts: $1,103,342
Assets and Liabilities:
- Total Assets: $2,928,508
- Total Liabilities: $46,995
- Net Assets: $2,881,513
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Organization Details
Founding Year
1981
Principal Officer
Bonnie Royster
Website
www.cdlsusa.orgNTEE Category
Code: G80 - Disease
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