Overview
What is Childrens Fund For Glycogen Storage Disease Research Inc?
Children's Fund for Glycogen Storage Disease Research Inc is a nonprofit organization located at 20 Sherwood Lane, Cheshire, Connecticut. Their primary mission is to support, encourage, and advance medical research related to Glycogen Storage Disease (GSD), with a particular focus on Type 1A. To achieve this goal, the organization raises and disburses funds to individuals, laboratories, or corporate entities engaged in activities that aid in the diagnosis, treatment, and potential cure of GSD Type 1A. The organization is fully committed to utilizing its time, monetary, and human resources towards this exempt purpose.
Official website here: www.curegsd.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: Needs Improvement (Two-Star out of Four Stars, 69%)
Children's Fund for Glycogen Storage Disease Research Inc has received a two-star rating from Charity Navigator, indicating areas that require improvement. The organization performs well in several operational metrics, including a high program expense ratio of 94.44%, demonstrating a strong commitment to its mission. The board's composition is also commendable, with all members being independent and having documented meeting minutes, which supports transparency.
However, the nonprofit faces significant issues regarding governance policies, as it lacks essential documents like a conflict of interest policy, a whistleblower policy, and a document retention policy. These deficiencies have negatively impacted its accountability and finance score. Moreover, the absence of its tax form on the nonprofit's website further underscores the need for improved transparency and communication with stakeholders.
Overall, while the Children's Fund for Glycogen Storage Disease Research Inc shows promise in its programmatic focus and board independence, it must address its governance shortcomings to enhance its accountability and overall rating.
This AI summary has been generated from information found on Charity Navigator.
Is Childrens Fund For Glycogen Storage Disease Research Inc legitimate?
Childrens Fund For Glycogen Storage Disease Research Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Childrens Fund For Glycogen Storage Disease Research Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
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For more financial information, click here
Official website here: www.curegsd.org
What is the mission statement of Childrens Fund For Glycogen Storage Disease Research Inc?
The Children's Fund for Glycogen Storage Disease Research Inc is dedicated to raising and distributing funds to support individuals, laboratories, and corporate entities involved in activities aimed at the diagnosis, treatment, and eventual cure of Glycogen Storage Disease Type 1A. The organization fully utilizes its time, financial resources, and human resources towards this objective, with a goal of making significant strides in the field. The Children's Fund aims to contribute to the advancement of research and treatments, ultimately improving the lives of those affected by Glycogen Storage Disease Type 1A.
Official website here: www.curegsd.org
Who is the CEO of Childrens Fund For Glycogen Storage Disease Research Inc?
David Feldman is the President of Childrens Fund For Glycogen Storage Disease Research Inc.
Official website here: www.curegsd.org
What is the revenue of Childrens Fund For Glycogen Storage Disease Research Inc?
Childrens Fund For Glycogen Storage Disease Research Inc's revenue in 2022 was $552,956.
Official website here: www.curegsd.org
Who are the executives of Childrens Fund For Glycogen Storage Disease Research Inc and what are their salaries?
Here are 10 key members and their salaries:
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Official website here: www.curegsd.org
Where can I find the form 990 for Childrens Fund For Glycogen Storage Disease Research Inc?
Childrens Fund For Glycogen Storage Disease Research Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.curegsd.org
Learn more at the official website: www.curegsd.org
Mission Statement of Childrens Fund For Glycogen Storage Disease Research Inc
The Children's Fund for Glycogen Storage Disease Research Inc is dedicated to its primary mission. This mission involves raising and distributing funds to various individuals, laboratories, and corporate entities engaged in activities aimed at aiding in the diagnosis, treatment, and eventual cure of Glycogen Storage Disease Type 1A. The organization fully utilizes its time, monetary, and human resources to pursue this objective with utmost commitment. It is committed to supporting research and developments in this field, aiming to bring about significant advancements in the understanding and treatment of Glycogen Storage Disease Type 1A. The Children's Fund for Glycogen Storage Disease Research Inc serves as a crucial catalyst, providing necessary financial backing and resources to those working tirelessly to unravel the complexities of this disease and develop effective treatments for affected individuals.
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Impact
July, 2024
Childrens Fund For Glycogen Storage Disease Research Inc's impact is focused on raising and disbursing funds to support individuals, laboratories, and corporate entities involved in activities aimed at aiding in the diagnosis, treatment, and eventual cure of Glycogen Storage Disease Type 1A. This organization dedicates all of its time, monetary resources, and human resources towards this important mission of advancing medical research and treatment for Glycogen Storage Disease.
This information is meant to be a general summary of Childrens Fund For Glycogen Storage Disease Research Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $106
- Gross Receipts: $670,733
Assets and Liabilities:
- Total Assets: $1,108,745
- Total Liabilities: $6,500
- Net Assets: $1,102,245
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Organization Details
Phone
(203) 272-7744Principal Officer
David Feldman
Main Address
20 SHERWOOD LANE, CHESHIRE, CT, 06410
Website
www.curegsd.orgNTEE Category
Code: T22 - Philanthropy
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