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Usa Aniridia Network

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 043599174 ✦ Cordova, TN ✦ Designated as a 501(c)(3)

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Overview

What is Usa Aniridia Network?

The U.S. Aniridia Network, represented by Aniridia Foundation International, is a nonprofit organization situated in Cordova, Tennessee. It specializes in offering educational and support programs for individuals and families impacted by Aniridia Syndrome, a genetic disorder leading to low vision or blindness, along with various other medical issues caused by underdeveloped eye structures. Aniridia Foundation International organizes distinctive "Make a Miracle" conferences, inviting renowned physicians and researchers to share their insights with those affected by Aniridia Syndrome. Additionally, the organization funds and hosts its own biennial conference, featuring leading medical experts.


Official website here: www.make-a-miracle.org

Is Usa Aniridia Network legitimate?

Usa Aniridia Network is a legitimate nonprofit organization registered as a 501(c)(3) entity. Usa Aniridia Network submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Official website here: www.make-a-miracle.org

What is the mission statement of Usa Aniridia Network?

The U.S. Aniridia Network, represented by the Aniridia Foundation International, is committed to providing educational and support programs for individuals and families affected by Aniridia Syndrome. This genetic disorder leads to low vision or blindness and various medical conditions due to underdeveloped eye structures. The organization hosts unique "Make a Miracle" conferences, inviting renowned physicians and researchers to share their insights with the community. Furthermore, AFI organizes and funds its own biennial conference, featuring top medical experts in the field. The primary aim of the U.S. Aniridia Network is to offer resources and knowledge to those living with Aniridia Syndrome, aiming to improve their quality of life.


Official website here: www.make-a-miracle.org

Who is the CEO of Usa Aniridia Network?

Jessica Otis is the Secretary of Usa Aniridia Network.


Official website here: www.make-a-miracle.org

What is the revenue of Usa Aniridia Network?

Usa Aniridia Network's revenue in 2022 was $82,364.


Official website here: www.make-a-miracle.org

Who are the executives of Usa Aniridia Network and what are their salaries?


Here are 4 key members and their salaries:


Jill A Nerby (Director)
  • Compensation: $80,000
  • Related: $0
  • Other: $0
Michael Marrazzo (Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Michael Talley (Officer & Ch)
  • Compensation: $0
  • Related: $0
  • Other: $0
Jessica Otis (Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.make-a-miracle.org

Where can I find the form 990EZ for Usa Aniridia Network?

Usa Aniridia Network's most recent form 990EZ was submitted in 2022 and can be accessed here.


Official website here: www.make-a-miracle.org

Learn more at the official website: www.make-a-miracle.org

Mission Statement of Usa Aniridia Network

The U.S. Aniridia Network, also known as Aniridia Foundation International, is dedicated to offering educational and support programs for individuals and families affected by Aniridia Syndrome. This genetic disorder leads to underdeveloped eye structures, resulting in low vision or blindness, and various other medical conditions. To accomplish its mission, the organization hosts unique "Make a Miracle" conferences, inviting renowned doctors and researchers to share their insights with those impacted by Aniridia Syndrome. Furthermore, every two years, AFI organizes and funds its own biennial conference, providing a platform for top medical professionals to share their knowledge and advancements in the field.

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Impact




October, 2024

The USA Aniridia Network has a significant impact on individuals and families affected by Aniridia Syndrome, a genetic disorder that causes low vision or blindness due to underdeveloped eye structures. By providing educational resources and support programs, it empowers those impacted by this condition and fosters a sense of community among patients and their families.

One of the Network's key initiatives is the "Make a Miracle" educational conferences, where leading physicians and researchers share the latest advancements in research and treatment. These events not only enhance awareness but also equip families with vital information and strategies to manage the challenges associated with Aniridia Syndrome.

Additionally, the Network hosts a biennial conference that brings together top experts in the field, facilitating direct interaction between families and healthcare professionals. This access to specialized knowledge and resources can lead to better management of the condition and improved quality of life for those affected.

Overall, the USA Aniridia Network plays an integral role in raising awareness, providing education, and building a support system, thereby enhancing the lives of individuals with Aniridia Syndrome and fostering a more informed community.




This information is meant to be a general summary of Usa Aniridia Network. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$82,364 (2022)
Expenses
$179,055 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $2,073
  • Gross Receipts: $102,483

Assets and Liabilities:

  • Total Assets: $310,954
  • Total Liabilities: $3,348
  • Net Assets: $307,606

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Organization Details

Principal Officer

Jessica Otis

Main Address

502 W REGIS PLACE, CORDOVA, TN, 38018

NTEE Category

Code: E60 - Health

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