Overview
What is Batten Disease Research?
Batten Disease Research is a nonprofit organization situated in Westport, Massachusetts. Their primary mission is to generate funding and foster research to enhance the quality of life for individuals afflicted with Batten Disease. They achieve this by focusing on various aspects such as medical care, education, vocational support, suitable housing, and financial assistance. Additionally, the organization collaborates and assists in maintaining a registry of individuals with Batten Disease and their families, both nationally and internationally.
Is Batten Disease Research legitimate?
Batten Disease Research is a legitimate nonprofit organization registered as a 501(c)(3) entity. Batten Disease Research submitted a form 990EZ, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
What is the mission statement of Batten Disease Research?
Batten Disease Research aims to raise funds and advocate for research in various fields related to Batten Disease. The organization's mission is to provide enhanced opportunities for individuals affected by this condition, encompassing medical, educational, vocational, housing, and financial aspects. Furthermore, Batten Disease Research collaborates and assists in maintaining a registry of individuals with the disease and their families on a national and international scale.
Who is the CEO of Batten Disease Research?
Maurice St Gelais is the President of Batten Disease Research.
What is the revenue of Batten Disease Research?
Batten Disease Research's revenue in 2022 was $25,354.
Who are the executives of Batten Disease Research and what are their salaries?
Here are 3 key members and their salaries:
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Where can I find the form 990EZ for Batten Disease Research?
Batten Disease Research's most recent form 990EZ was submitted in 2022 and can be accessed here.
Mission Statement of Batten Disease Research
Batten Disease Research, as an organization, is committed to advocating for and promoting research in the field of Batten Disease. Their mission is multifaceted, aiming to enhance opportunities for individuals diagnosed with Batten Disease through various means. This encompasses medical, educational, vocational, and housing support, among others. Moreover, they collaborate and assist in the establishment and maintenance of a registry of individuals with Batten Disease and their families, fostering a network on both national and international levels. The primary goal of Batten Disease Research is to maximize the quality of life for those affected by this disease, providing them with the necessary resources and support to navigate their journey.
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Impact
August, 2024
Batten Disease Research has made a significant impact in raising funds and promoting research to maximize opportunities for individuals with Batten Disease. Through their efforts, they have supported medical advancements, educational programs, vocational training, habitational support, and financial assistance for individuals affected by this rare neurodegenerative disorder. Additionally, the organization's collaboration with a registry of individuals with Batten Disease and their families on state, national, and international levels has helped to improve support networks and access to resources for those living with the disease. Located in Westport, MA, Batten Disease Research is dedicated to making a positive difference in the lives of individuals and families impacted by this challenging condition.
This information is meant to be a general summary of Batten Disease Research. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $17
- Gross Receipts: $40,033
Assets and Liabilities:
- Total Assets: $54,591
- Total Liabilities: $0
- Net Assets: $54,591
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Organization Details
Principal Officer
Maurice St Gelais
Main Address
265 AMERICAN LEGION HIGHWAY, WESTPORT, MA, 02790
NTEE Category
Code: G50 - Disease
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