Overview
What is Choroideremia Research Foundation Inc?
Choroideremia Research Foundation Inc, located at 23 E BRUNDRETH STREET in Springfield, Massachusetts, is a nonprofit organization committed to addressing Choroideremia, a hereditary retinal-degenerative disease leading to blindness. Their primary mission involves gathering funds for extensive scientific research aimed at discovering a treatment or a cure. Furthermore, they offer educational programs for individuals affected by the disease and the general public, fostering awareness and understanding. With a team of eight dedicated employees, their work extends beyond research, encompassing advocacy initiatives that aim to support and empower those touched by this condition.
Official website here: www.curechm.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 100% (Four-Star out of Four Stars)
The Choroideremia Research Foundation (CRF) has achieved an outstanding Four-Star rating from Charity Navigator, indicating its strong commitment to accountability and finance. With a perfect Accountability & Finance score of 100%, the foundation demonstrates transparency in its operations, effective use of resources, and a solid financial management structure. Important metrics, such as a 78.7% program expense ratio, reflect its focus on funding research and support for those affected by Choroideremia.
User feedback across various platforms highlights the CRF's significant impact on individuals and families grappling with the challenges of Choroideremia. Many users praise the organization for its dedication to funding research and providing emotional and practical support to affected families. Testimonials frequently mention how CRF fosters a sense of community, offering hope and connection among those who feel isolated due to the rarity of the condition.
While the organization has received overwhelmingly positive reviews, the data suggest a strong dependency on the passionate involvement of its members, volunteers, and board. This engagement appears to be a key factor in CRF's effectiveness, as noted by many contributors who emphasize the connection and support among the community. Overall, the CRF is recognized as a vital resource for fostering awareness, funding research, and providing a supportive network for those impacted by this rare genetic disease.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
What do the Facebook reviews say about Choroideremia Research Foundation Inc?
While the Choroideremia Research Foundation hasn't yet accumulated a significant number of ratings, early reviews suggest a promising sentiment towards its mission. All available feedback highlights strong support for the foundation's focus on research aimed at curing blindness, indicating that it resonates well with advocates for vision restoration.
The single review available reflects a positive perspective, recommending the foundation's efforts in advancing research related to this crucial health issue. This suggests that supporters find value in the foundation's work and its potential impact on those affected by choroideremia.
Overall, there is an encouraging sentiment surrounding the Choroideremia Research Foundation, with individuals eager to promote and support the essential research initiatives they are undertaking.
This AI summary has been generated from reviews found on Facebook.
Is Choroideremia Research Foundation Inc legitimate?
Choroideremia Research Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Choroideremia Research Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $161,146
For more financial information, click here
Official website here: www.curechm.org
What is the mission statement of Choroideremia Research Foundation Inc?
The Choroideremia Research Foundation Inc is dedicated to funding scientific research with the goal of discovering a treatment or cure for Choroideremia, a hereditary retinal-degenerative disease that leads to blindness. They also aim to educate individuals affected by the disease and the general public about this condition. Their mission encompasses providing grants for research and initiating programs focused on patient and family education and advocacy.
Official website here: www.curechm.org
Who is the CEO of Choroideremia Research Foundation Inc?
Kathi Wagner is the President of Choroideremia Research Foundation Inc.
Official website here: www.curechm.org
What is the revenue of Choroideremia Research Foundation Inc?
Choroideremia Research Foundation Inc's revenue in 2022 was $664,881.
Official website here: www.curechm.org
Who are the executives of Choroideremia Research Foundation Inc and what are their salaries?
The average compensation at Choroideremia Research Foundation Inc during 2022 was $20,143. There are 8 employees at Choroideremia Research Foundation Inc.
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Official website here: www.curechm.org
Where can I find the form 990 for Choroideremia Research Foundation Inc?
Choroideremia Research Foundation Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.curechm.org
Learn more at the official website: www.curechm.org
Mission Statement of Choroideremia Research Foundation Inc
The Choroideremia Research Foundation Inc is committed to raising funds for scientific research aimed at discovering a treatment or cure for Choroideremia, a hereditary retinal-degenerative disease that leads to blindness. Beyond funding research, this organization also focuses on educating individuals affected by the disease and the general public about Choroideremia. Their mission encompasses providing grants for research, as well as advocacy and educational programs to support those impacted by this condition.
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Impact
July, 2024
Choroideremia Research Foundation Inc's impact is significant as it focuses on raising funds to support scientific research aimed at finding a treatment or cure for Choroideremia, a hereditary retinal-degenerative disease that leads to blindness. By providing grants for research and education programs, the foundation plays a crucial role in advancing knowledge about the disease and supporting those affected by it. Through its efforts, the foundation contributes to the development of potential breakthroughs in the field of Choroideremia research, offering hope to patients and their families.
This information is meant to be a general summary of Choroideremia Research Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $11,682
- Program Service Revenue: $707
- Gross Receipts: $664,881
Assets and Liabilities:
- Total Assets: $985,906
- Total Liabilities: $0
- Net Assets: $985,906
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
Miscellaneous
Revenue
$707
Organization Details
Founding Year
2000
Phone
(800) 210-0233Principal Officer
Kathi Wagner
Main Address
23 E BRUNDRETH STREET, SPRINGFIELD, MA, 011092110
Website
www.curechm.orgNTEE Category
Code: U05 - Science research
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