Overview
What is Adult Congenital Heart Association?
The Adult Congenital Heart Association (ACHA) is a dedicated nonprofit organization situated in Media, Pennsylvania. With a mission to enhance and prolong the lives of those born with heart defects, ACHA engages in advocacy, outreach, and research activities. In the realm of advocacy, ACHA collaborates with Congressional Congenital Heart Caucus, a group initiated by their efforts, aiming to increase its membership. The association also works with an advocacy firm and hosts briefings to disseminate information about Adult Congenital Heart Disease. Outreach efforts include regional development leaders who raise awareness and foster champions across different regions. In terms of research, ACHA funded four grants in 2022, bringing the total number of grants issued since 2019 to 14, amounting to $400,000. With a team of 16 employees, ACHA serves and supports nearly two million adults with heart defects, their families, and the medical community.
Official website here: www.achaheart.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 96% (Four-Star out of Four Stars)
The Adult Congenital Heart Association (ACHA) has earned a Four-Star rating from Charity Navigator, reflecting its exceptional performance in accountability and finance, where it scored a perfect 100. The organization has a strong program expense ratio of 71.53%, indicating that a significant portion of its funding is directed towards its mission. ACHA maintains a fully independent board, demonstrating robust governance practices, and has a high score in feedback collection and usage, showing that it actively listens to and implements suggestions from its community.
User feedback highlights ACHA's critical role in supporting adults with congenital heart disease (CHD). Many individuals have shared transformative experiences, noting the organization's wealth of resources, community support, and advocacy efforts that have significantly improved their quality of life. Testimonials emphasize the value of ACHA's educational materials and peer connections, which help patients navigate their health journeys with confidence and courage.
While the organization has received overwhelmingly positive reviews, some feedback points to areas for potential improvement, particularly concerning the management of fundraising events. However, overall, ACHA is recognized as a vital resource for adults living with CHD, effectively advocating for their needs and raising awareness about congenital heart conditions.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Adult Congenital Heart Association legitimate?
Adult Congenital Heart Association is a legitimate nonprofit organization registered as a 501(c)(3) entity. Adult Congenital Heart Association submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $313,235
Professional Fundraising Fees: $0
Other Salaries and Wages: $720,275
For more financial information, click here
Official website here: www.achaheart.org
What is the mission statement of Adult Congenital Heart Association?
The Adult Congenital Heart Association (ACHA) strives to enhance and prolong the lives of individuals born with heart defects. Their mission, as expressed, is to accomplish this through advocacy, education, and the promotion of research. The organization serves and supports nearly two million adults with congenital heart defects, their families, and the medical community.
In pursuit of their mission, ACHA engages in advocacy activities. For instance, they collaborate with a legislative advocacy firm and host briefings for members of Congress, aiming to increase the number of legislators involved in the Congenital Heart Caucus, an informal group dedicated to issues related to heart defects.
The association also focuses on outreach, covering two regions in 2022 to raise awareness about congenital heart diseases and develop champions across regions. Furthermore, ACHA supports research by funding grants. In 2022, they funded four research grants, bringing the total number of grants issued since 2019 to 14, amounting to $400,000.
Official website here: www.achaheart.org
Who is the CEO of Adult Congenital Heart Association?
Mark Roeder is the Chair of Adult Congenital Heart Association. The CEO's salary of Adult Congenital Heart Association is $197,601 and their total compensation is $207,157.
Official website here: www.achaheart.org
What is the revenue of Adult Congenital Heart Association?
Adult Congenital Heart Association's revenue in 2022 was $1,698,174.
Official website here: www.achaheart.org
Who are the executives of Adult Congenital Heart Association and what are their salaries?
The average compensation at Adult Congenital Heart Association during 2022 was $64,594. There are 16 employees and 490 volunteers at Adult Congenital Heart Association.
Here are 21 key members and their salaries (Adult Congenital Heart Association's CEO's salary is $197,601 and their total compensation is $207,157):
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- Other: $11,159
Official website here: www.achaheart.org
Where can I find the form 990 for Adult Congenital Heart Association?
Adult Congenital Heart Association's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.achaheart.org
Learn more at the official website: www.achaheart.org
Mission Statement of Adult Congenital Heart Association
The Adult Congenital Heart Association (ACHA) is dedicated to enhancing and prolonging the lives of millions of individuals born with congenital heart defects. With a mission to serve and support nearly two million adults affected by these conditions, their families, and the medical community, ACHA works tirelessly towards this goal through education, advocacy, and the promotion of research.
At the heart of ACHA's mission is its commitment to improving the lives of those with congenital heart defects. This involves providing resources, support, and knowledge to help these individuals navigate their health journeys. The organization's work extends beyond just the patients, reaching out to their families and the medical community as well.
In pursuit of its mission, ACHA engages in various activities. Advocacy is a significant part of its work, as evident in its collaboration with the Congressional Congenital Heart Caucus. By inviting medical advisory board members and experts from the CDC to speak, ACHA advocates for issues related to congenital heart defects. The organization is also actively working to increase the number of members serving on this caucus.
ACHA's outreach efforts cover various regions to raise awareness about congenital heart defects and develop champions across these regions. In terms of research, the organization has funded several grants, contributing to a total of 14 grants issued since 2019, amounting to $400,000. These initiatives aim to advance our understanding of congenital heart defects, ultimately leading to better treatments and outcomes for those affected.
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Impact
July, 2024
The Adult Congenital Heart Association (ACHA) impacts millions of individuals born with congenital heart defects by improving and extending their lives through education, advocacy, and the promotion of research. ACHA's activities include advocacy efforts such as the Congressional Congenital Heart Caucus, outreach programs that raise awareness and develop champions across regions, and funding research grants to advance knowledge and treatment options for congenital heart defects. ACHA's mission serves and supports nearly two million adults with congenital heart defects, their families, and the medical community, making a significant difference in the lives of those affected by this condition.
This information is meant to be a general summary of Adult Congenital Heart Association. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: -$43,818
- Program Service Revenue: $152,121
- Gross Receipts: $2,049,229
Assets and Liabilities:
- Total Assets: $1,503,657
- Total Liabilities: $310,096
- Net Assets: $1,193,561
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Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
PROGRAM AND EVENTS
Revenue
$152,121
Organization Details
Founding Year
1998
Phone
(215) 849-1260Principal Officer
Mark Roeder
Main Address
280 NORTH PROVIDENCE ROAD 6, MEDIA, PA, 19063
Website
www.achaheart.orgNTEE Category
Code: G43 - Disease
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