Overview
What is Pxe International Inc?
Pxe International Inc, based in Damascus, Maryland, is a nonprofit organization that is dedicated to advancing research and support for individuals affected by Pseudoxanthoma Elasticum (PXE). The organization conducts and manages various studies, including a registry and biobank, epidemiological studies, and clinical trials. Their mission involves initiating and carrying out research, educating medical professionals, and providing assistance to those affected by PXE. Pxe International Inc employs a team of four individuals in its operations.
Official website here: www.pxe.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 87% (Three-Star out of Four Star rating)
Pxe International Inc has achieved a commendable score of 87%, reflecting a strong commitment to accountability and finance, combined with an exemplary culture and community score of 100. The organization demonstrates solid financial practices, with a high program expense ratio of 88.43% and a fully independent board, indicating a robust governance structure. Their policies for conflict of interest, whistleblower protection, and document retention are all well-established, contributing to their overall positive assessment.
However, user feedback suggests that while the organization has a noble mission to find a cure for PXE, there are significant areas for improvement. A volunteer noted that the organization lacks sufficient public awareness initiatives and support for patients, which are critical for those living with the disease. Despite the hope that research may lead to treatments, there are concerns about the absence of preventive measures and adequate medical care for affected individuals.
Overall, while Pxe International Inc scores well in financial health and governance, it faces challenges in enhancing public outreach and patient support. Addressing these concerns could further strengthen its impact within the community it serves.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Pxe International Inc legitimate?
Pxe International Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Pxe International Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $174,446
For more financial information, click here
Official website here: www.pxe.org
What is the mission statement of Pxe International Inc?
Pxe International Inc is dedicated to advancing research, educating healthcare professionals, and providing support for individuals affected by Pseudoxanthoma Elasticum (PXE). The organization's mission is to initiate and conduct research studies on PXE, manage a registry and biobank, and participate in epidemiological studies. They also recruit participants for clinical trials and aim to educate clinicians about PXE to improve diagnosis and treatment options. Additionally, Pxe International Inc provides support to individuals living with PXE, offering resources and assistance to help them navigate their condition.
Official website here: www.pxe.org
Who is the CEO of Pxe International Inc?
Sharon Terry is the Medical Director of Pxe International Inc. The CEO's salary of Pxe International Inc is $0 and their total compensation is $0.
Official website here: www.pxe.org
What is the revenue of Pxe International Inc?
Pxe International Inc's revenue in 2022 was $594,224.
Official website here: www.pxe.org
Who are the executives of Pxe International Inc and what are their salaries?
The average compensation at Pxe International Inc during 2022 was $43,612. There are 4 employees at Pxe International Inc.
Here are 7 key members and their salaries (Pxe International Inc's CEO's salary is $0 and their total compensation is $0):
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
- Compensation: $0
- Related: $0
- Other: $0
Official website here: www.pxe.org
Where can I find the form 990 for Pxe International Inc?
Pxe International Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.pxe.org
Learn more at the official website: www.pxe.org
Mission Statement of Pxe International Inc
Pxe International Inc, an organization dedicated to Pseudoxanthoma Elasticum (PXE), carries out research, educates healthcare professionals, and extends support to individuals affected by this condition. Their primary mission involves initiating and conducting thorough research into PXE, aiming to uncover more about this complex disorder. In addition to research, Pxe International Inc plays a crucial role in educating medical professionals, ensuring they are equipped with the latest knowledge and understanding of PXE, thereby improving the quality of care provided to affected individuals. Furthermore, the organization extends its reach to directly support those diagnosed with PXE, offering various resources and services. This includes managing a registry and biobank, as well as participating in epidemiological and biomedical studies, and recruiting for clinical trials.
Shop smarter and support your favorite cause with the Give Freely browser extension. Save money with coupons and donate to charity with a single click. Download now!
Impact
July, 2024
PXE International Inc's impact is profound in the field of pseudoxanthoma elasticum (PXE). Through their research initiatives, educational programs for clinicians, and support for individuals affected by PXE, the organization has significantly contributed to advancing knowledge and understanding of this rare genetic disorder. PXE International manages a registry and biobank, conducts epidemiological studies, and collaborates on various biomedical research projects to further the understanding of PXE. By recruiting participants for clinical trials and providing support to those impacted by the disease, PXE International plays a crucial role in improving the outcomes and quality of life for individuals living with PXE.
This information is meant to be a general summary of Pxe International Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $801
- Program Service Revenue: $125
- Gross Receipts: $594,224
Assets and Liabilities:
- Total Assets: $422,744
- Total Liabilities: $388,681
- Net Assets: $34,063
Want to help this charity, for free? You can click here to learn more about Give Freely
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
MEETING REVENUE
Revenue
$125
Organization Details
Founding Year
1995
Phone
(202) 362-9599Principal Officer
Sharon Terry
Main Address
26400 WOODFIELD ROAD 189, DAMASCUS, MD, 20872
Website
www.pxe.orgNTEE Category
Code: G80 - Disease
If you are a representative of Pxe International Inc and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.