Overview
What is Neurofibromatosis Network?
The Neurofibromatosis Network is a nonprofit organization based in Wheaton, Illinois. Their primary mission is to provide comprehensive support and resources to individuals and families affected by Neurofibromatosis, a genetic disorder. They offer information about the disorder, assisting individuals in locating medical, social, and genetic counseling. Furthermore, the Neurofibromatosis Network actively fundraises and seeks research funds to find a cure for the condition. With a dedicated team of five employees, they strive to make a significant impact on the lives of those affected by Neurofibromatosis.
Official website here: www.nfnetwork.org
What do the Facebook reviews say about Neurofibromatosis Network?
92% of 247 reviewers on Facebook recommend the Neurofibromatosis Network. Here is a summary of their reviews:
The majority of users express strong support for the organization, highlighting its commitment to raising awareness and providing assistance for those affected by neurofibromatosis. Many reviewers appreciate the nonprofit’s community engagement and the resources it offers, which they find valuable in navigating the challenges associated with the condition.
Overall, the sentiment is overwhelmingly positive, with contributors recognizing the importance of supporting the organization's mission. The Neurofibromatosis Network appears to have a dedicated following that values its efforts in advocacy and education.
This AI summary has been generated from reviews found on Facebook.
Is Neurofibromatosis Network legitimate?
Neurofibromatosis Network is a legitimate nonprofit organization registered as a 501(c)(3) entity. Neurofibromatosis Network submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $235,305
For more financial information, click here
Official website here: www.nfnetwork.org
What is the mission statement of Neurofibromatosis Network?
The Neurofibromatosis Network's mission is centered around providing information about Neurofibromatosis to individuals affected by the disorder and their families. They aim to assist in finding medical, social, and genetic counseling for those in need. Furthermore, the organization actively seeks and raises funds for research with the ultimate goal of finding a cure for Neurofibromatosis.
Official website here: www.nfnetwork.org
What is the revenue of Neurofibromatosis Network?
Neurofibromatosis Network's revenue in 2023 was $410,383.
Official website here: www.nfnetwork.org
Who are the executives of Neurofibromatosis Network and what are their salaries?
The average compensation at Neurofibromatosis Network during 2023 was $47,061. There are 5 employees and 120 volunteers at Neurofibromatosis Network.
Here are 18 key members and their salaries:
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Official website here: www.nfnetwork.org
Where can I find the form 990 for Neurofibromatosis Network?
Neurofibromatosis Network's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.nfnetwork.org
Learn more at the official website: www.nfnetwork.org
Mission Statement of Neurofibromatosis Network
The Neurofibromatosis Network is committed to providing vital information about Neurofibromatosis to those affected by the disorder and their families. Their mission is twofold: firstly, they aim to help families find necessary medical, social, and genetic counseling. Secondly, they actively seek and raise funds for research to find a cure for Neurofibromatosis. By fulfilling this mission, the Neurofibromatosis Network strives to assist individuals living with the disorder, offering them the necessary resources and support to navigate their challenges.
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Impact
October, 2024
The Neurofibromatosis Network significantly impacts the lives of individuals affected by neurofibromatosis by providing essential information about the disorder. This organization serves as a vital resource, guiding families through the complexities of medical, social, and genetic counseling. By raising funds for research aimed at finding a cure, it not only fosters hope among those impacted but also advances the scientific understanding of neurofibromatosis. The support network nurtured by this organization enhances the well-being of affected families, empowers them with knowledge, and strengthens their community through shared experiences and resources.
This information is meant to be a general summary of Neurofibromatosis Network. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $14,488
- Gross Receipts: $499,675
Assets and Liabilities:
- Total Assets: $1,209,936
- Total Liabilities: $4,974
- Net Assets: $1,204,962
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Organization Details
Founding Year
1990
Principal Officer
Gregg Erickson
Website
www.nfnetwork.orgNTEE Category
Code: H30Z - Medical research
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