Neurofibromatosis Inc Northeast

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 043013709 ✦ Burlington, MA ✦ Designated as a 501(c)(3)

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Overview

What is Neurofibromatosis Inc Northeast?

Neurofibromatosis Inc Northeast, located at 9 Bedford Street, Burlington, MA 01803, is a dedicated nonprofit organization. Their primary mission is to support research aimed at understanding the causes, finding a cure, and developing effective treatments for Neurofibromatosis. They accomplish this by making grants to fund relevant studies. Beyond research, Neurofibromatosis Inc Northeast also provides support services to patients and their families, fostering a sense of community and assistance during challenging times. They further support clinics specializing in diagnosis and treatment, as well as initiatives to raise awareness about Neurofibromatosis, ensuring broader understanding and empathy for those affected by this condition.


Official website here: www.nfnortheast.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 100% (Four-Star out of Four Stars)

Neurofibromatosis Inc Northeast has achieved a Four-Star rating from Charity Navigator, indicating a high level of accountability and financial health. The organization scores 100% on their Accountability & Finance beacon, demonstrating solid governance practices and strong oversight of financial activities. This level of transparency is a positive indicator of the nonprofit's commitment to responsible management.

The organization boasts a fully independent board consisting of 15 members, which contributes to its robust governance structure. Key policies such as conflict of interest and whistleblower protections are well-documented, and the organization actively publishes its financial documents, reinforcing its commitment to transparency. With a program expense ratio of 70.06%, it effectively channels a significant majority of its resources toward its mission.

While the overall rating reflects a strong performance, the data emphasizes the importance of maintaining these standards. The charity's minimal liabilities and effective financial oversight contribute to its positive standing; however, continuous efforts to uphold these practices will be essential for long-term sustainability and trust among donors and stakeholders.


This AI summary has been generated from information found on Charity Navigator.

What do the Facebook reviews say about Neurofibromatosis Inc Northeast?

100% of 30 reviewers on Facebook recommend Neurofibromatosis Inc Northeast. Here is a summary of their reviews:

The organization has been positively received, with members expressing excitement about the support and possibilities it offers for those affected by neurofibromatosis. Many individuals appreciate the sense of community and the resources available through the nonprofit.

Overall, there is a strong sentiment of satisfaction among individuals who engage with Neurofibromatosis Inc Northeast, highlighting its effectiveness in addressing the needs and concerns of people impacted by this condition.


This AI summary has been generated from reviews found on Facebook.

Is Neurofibromatosis Inc Northeast legitimate?

Neurofibromatosis Inc Northeast is a legitimate nonprofit organization registered as a 501(c)(3) entity. Neurofibromatosis Inc Northeast submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $234,695

For more financial information, click here


Official website here: www.nfnortheast.org

What is the mission statement of Neurofibromatosis Inc Northeast?

Neurofibromatosis Inc. Northeast's mission is primarily focused on supporting research into the causes, cure, and treatment of Neurofibromatosis. They accomplish this by providing financial aid through grants for studies. The organization also aims to promote and offer support services to individuals diagnosed with Neurofibromatosis and their families. Furthermore, Neurofibromatosis Inc. Northeast supports clinics dedicated to diagnosis and treatment and funds programs aimed at increasing awareness of the disease.


Official website here: www.nfnortheast.org

What is the revenue of Neurofibromatosis Inc Northeast?

Neurofibromatosis Inc Northeast's revenue in 2023 was $558,976.


Official website here: www.nfnortheast.org

Who are the executives of Neurofibromatosis Inc Northeast and what are their salaries?

The average compensation at Neurofibromatosis Inc Northeast during 2023 was $39,116. There are 6 employees at Neurofibromatosis Inc Northeast.

Here are 17 key members and their salaries:


Sharon Klein (Executive Di)
  • Compensation: $133,692
  • Related: $0
  • Other: $4,305
Frank Buono (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Ben Buttrick (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Patrick Callahan (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Alexandra Powers Cellucci (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tamara Indianer (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Justin Jordan (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Andres Lessing (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Andres Lessing (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
Melissa Shea Malerba (Director/ Se)
  • Compensation: $0
  • Related: $0
  • Other: $0
John Manth (Chairperson)
  • Compensation: $0
  • Related: $0
  • Other: $0
Theresa Owhady (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Nicole Ullrich Md Phd (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kristina Rath (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Marybeth Shaw (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
John Shea (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
John Thomson (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0


Official website here: www.nfnortheast.org

Where can I find the form 990 for Neurofibromatosis Inc Northeast?

Neurofibromatosis Inc Northeast's most recent form 990 was submitted in 2023 and can be accessed here.


Official website here: www.nfnortheast.org

Learn more at the official website: www.nfnortheast.org

Mission Statement of Neurofibromatosis Inc Northeast

Neurofibromatosis Inc. Northeast, a dedicated organization, is committed to raising funds for the investigation of the causes, potential cures, and treatment of Neurofibromatosis. Their mission extends beyond this, aiming to promote and provide support services to those affected by the disease and their families. Furthermore, they support clinics focused on diagnosing and treating Neurofibromatosis, as well as initiatives aimed at increasing awareness of the disease. By making grants for research, Neurofibromatosis Inc. Northeast contributes significantly to the scientific community's understanding of this condition, ultimately aiming to improve the lives of those affected.

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Impact




July, 2024

Neurofibromatosis Inc Northeast's impact lies in supporting research into the causes, cure, and treatment of neurofibromatosis, a challenging disease. By raising funds and providing grants for studies related to this condition, the organization contributes to advancing medical knowledge and potentially finding solutions for those affected by neurofibromatosis. Additionally, Neurofibromatosis Inc Northeast promotes awareness of the disease, offers support services to patients and their families, and backs clinics dedicated to diagnosis and treatment. Through these efforts, the organization plays a crucial role in improving the lives of individuals dealing with neurofibromatosis.




This information is meant to be a general summary of Neurofibromatosis Inc Northeast. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$558,976 (2023)
Expenses
$642,447 (2023)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2023.

  • Investment Income: $14,248
  • Gross Receipts: $847,628

Assets and Liabilities:

  • Total Assets: $842,757
  • Total Liabilities: $19,830
  • Net Assets: $822,927

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Organization Details

Principal Officer

John Manth

NTEE Category

Code: G20 - Disease

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