Overview
What is Suneel Research Foundation?
The Suneel Research Foundation is a nonprofit organization located in Buffalo, New York, with a specific focus on funding research to eradicate Duchenne's Muscular Dystrophy (DMD). They aim to alleviate suffering, prevent further complications, and promote awareness of this condition through their initiatives. Currently, there are several ongoing clinical trials for potential DMD treatments, and the foundation has played a significant role in the FDA's approval of two drugs – Exondys 51 and Vyondys 53 – which can help approximately 21% of DMD patients with specific gene mutations. The foundation continues to raise funds and advocate for medical and scientific research to find a cure for DMD.
Official website here: www.suneelslight.com
What are the reviews and ratings of this charity?
Charity Navigator Rating: 76% (Three-Star out of Four Star rating)
The Suneel Research Foundation has achieved a score of 76%, indicating a solid level of accountability and financial health. The rating is derived entirely from the Accountability & Finance beacon, reflecting the organization's commitment to responsible financial practices. Notably, the Foundation boasts a fully independent board with no material diversion of assets, which are positive indicators of sound governance.
The Foundation's strengths include a high program expense ratio of 92.72%, suggesting that a significant majority of its resources are directed toward programs rather than administrative costs. Additionally, the Foundation has met several key criteria including the publication of board meeting minutes and the posting of tax forms on its website, enhancing transparency.
However, there are some limitations to note. The organization lacks a conflict of interest policy, a whistleblower policy, and a document retention and destruction policy, which could potentially raise concerns about governance practices. Addressing these gaps could strengthen the Foundation's overall ratings and public trust.
This AI summary has been generated from information found on Charity Navigator.
Is Suneel Research Foundation legitimate?
Suneel Research Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Suneel Research Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
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For more financial information, click here
Official website here: www.suneelslight.com
What is the mission statement of Suneel Research Foundation?
The Suneel Research Foundation's mission is centered around raising funds to foster and advance medical and scientific research aimed at finding a cure for Duchenne's Muscular Dystrophy (DMD). Besides this, the foundation strives to prevent and alleviate suffering associated with the condition while promoting education and awareness about Duchenne's Muscular Dystrophy. The foundation's activities primarily involve funding research projects and supporting clinical trials for potential DMD treatments. Notably, in 2016 and 2019, the U.S. Food and Drug Administration (FDA) approved two treatments, Exondys 51 and Vyondys 53, developed by Sarepta Therapeutics, for patients with specific DMD mutations, thanks in part to the foundation's efforts.
Official website here: www.suneelslight.com
What is the revenue of Suneel Research Foundation?
Suneel Research Foundation's revenue in 2024 was $31,942.
Official website here: www.suneelslight.com
Who are the executives of Suneel Research Foundation and what are their salaries?
There 40 volunteers at Suneel Research Foundation.
Here are 8 key members and their salaries:
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Official website here: www.suneelslight.com
Where can I find the form 990 for Suneel Research Foundation?
Suneel Research Foundation's most recent form 990 was submitted in 2024 and can be accessed here.
Official website here: www.suneelslight.com
Learn more at the official website: www.suneelslight.com
Mission Statement of Suneel Research Foundation
The Suneel Research Foundation is dedicated to raising funds to foster and advance medical and scientific research for the purpose of discovering a cure for Duchenne's Muscular Dystrophy (DMD). Beyond this, the foundation aims to prevent and alleviate suffering associated with the condition, while promoting education and awareness about DMD. The foundation's mission is to make significant strides in the field of DMD research, ultimately leading to a potential cure for this debilitating disease.
Currently, the Suneel Research Foundation supports various clinical trials aimed at treating different aspects of Duchenne's Muscular Dystrophy. One of the notable achievements in this regard is the FDA approval of Sarepta Therapeutics' drug Exondys 51, which can be used to treat DMD patients with a confirmed mutation of the dystrophin gene amenable to exon 51 skipping. In 2019, Sarepta's new drug Vyondys 53 also received FDA approval for the treatment of patients with a confirmed mutation of the dystrophin gene linked to exon 53 skipping. These treatments have the potential to benefit approximately 21% of DMD patients.
In summary, the Suneel Research Foundation is committed to funding research efforts and raising awareness to find a cure for Duchenne's Muscular Dystrophy. By supporting clinical trials and promoting education, the foundation works to prevent and alleviate suffering associated with the condition, ultimately striving to improve the lives of those affected by DMD.
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Impact
August, 2024
Suneel Research Foundation's impact lies in its dedicated efforts to advance medical and scientific research aimed at finding a cure for Duchenne's Muscular Dystrophy (DMD). Through fundraising and support, the Foundation has contributed to ongoing clinical trials for drugs designed to address different aspects of DMD. Notably, the Foundation played a role in the FDA approvals of drugs like Exondys 51 and Vyondys 53, which benefit a significant portion of DMD patients. By fostering research, preventing suffering, and promoting education and awareness, Suneel Research Foundation is actively making a difference in the fight against DMD.
This information is meant to be a general summary of Suneel Research Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2024.
- Investment Income: $17,142
- Gross Receipts: $31,942
Assets and Liabilities:
- Total Assets: $410,040
- Total Liabilities: $0
- Net Assets: $410,040
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Organization Details
Founding Year
2002
Principal Officer
Thomas A Maher Cpa
Website
www.suneelslight.comNTEE Category
Code: T032 - Philanthropy
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