Overview
What is The Fibrous Dysplasia Foundation?
The Fibrous Dysplasia Foundation is a nonprofit organization based in Bethesda, Maryland, dedicated to supporting individuals affected by Fibrous Dysplasia and McCune-Albright Syndrome. Their mission encompasses research, education, awareness, and support initiatives. In 2022, they partnered with the UPenn Orphan Disease Center and the Million Dollar Bike Ride (MDBR) program to fund three research projects aimed at understanding pain mechanisms and potential treatments for Fibrous Dysplasia. In Spring 2023, they raised funds for additional research projects, which will be announced and awarded in 2023 and 2024, respectively. The Fibrous Dysplasia Foundation operates under the name FDMAS Alliance and employs a team of three dedicated individuals.
Official website here: www.fdmasalliance.org
Is The Fibrous Dysplasia Foundation legitimate?
The Fibrous Dysplasia Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Fibrous Dysplasia Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $84,976
Professional Fundraising Fees: $0
Other Salaries and Wages: $83,767
For more financial information, click here
Official website here: www.fdmasalliance.org
What is the mission statement of The Fibrous Dysplasia Foundation?
The Fibrous Dysplasia Foundation serves individuals affected by Fibrous Dysplasia/McCune-Albright Syndrome through initiatives in research, education, awareness, and support. Their mission is to advance understanding of these conditions and provide resources to those affected. In 2022, they funded three research projects in partnership with the UPenn Orphan Disease Center and the Million Dollar Bike Ride (MDBR) Program. For the upcoming year, they aim to raise funds for additional research projects, which will be announced and awarded in 2024. The foundation also supports education and awareness efforts to increase understanding of these conditions.
Official website here: www.fdmasalliance.org
Who is the CEO of The Fibrous Dysplasia Foundation?
Anne Corvelle is the Executive Di of The Fibrous Dysplasia Foundation.
Official website here: www.fdmasalliance.org
What is the revenue of The Fibrous Dysplasia Foundation?
The Fibrous Dysplasia Foundation's revenue in 2023 was $282,768.
Official website here: www.fdmasalliance.org
Who are the executives of The Fibrous Dysplasia Foundation and what are their salaries?
The average compensation at The Fibrous Dysplasia Foundation during 2023 was $56,248. There are 3 employees and 90 volunteers at The Fibrous Dysplasia Foundation.
Here are 12 key members and their salaries:
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Official website here: www.fdmasalliance.org
Where can I find the form 990 for The Fibrous Dysplasia Foundation?
The Fibrous Dysplasia Foundation's most recent form 990 was submitted in 2023 and can be accessed here.
Official website here: www.fdmasalliance.org
Learn more at the official website: www.fdmasalliance.org
Mission Statement of The Fibrous Dysplasia Foundation
The Fibrous Dysplasia Foundation is dedicated to serving individuals impacted by Fibrous Dysplasia/McCune-Albright Syndrome. This nonprofit organization accomplishes its mission through various programs, including research, education, awareness, and support. By partnering with organizations such as the UPenn Orphan Disease Center and the Million Dollar Bike Ride (MDBR) program, the Foundation funded three research projects in 2022. These projects focused on pain management, the impact of anti-resorptive treatments, and the rebound phenomenon related to the disease.
In addition to funding research, The Fibrous Dysplasia Foundation also focuses on education and awareness. In the spring of 2023, the organization, along with its partners, raised funds for two to four research projects to be announced in 2023 and awarded in 2024. This ongoing commitment to research and education is aimed at advancing understanding of Fibrous Dysplasia/McCune-Albright Syndrome and improving the lives of those affected by the condition.
By providing support to individuals with Fibrous Dysplasia/McCune-Albright Syndrome, The Fibrous Dysplasia Foundation is a vital resource for those impacted by this condition. Through its programs of research, education, awareness, and support, the organization is dedicated to improving the lives of those affected by Fibrous Dysplasia/McCune-Albright Syndrome.
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Impact
October, 2024
The Fibrous Dysplasia Foundation actively impacts the lives of individuals affected by fibrous dysplasia and McCune-Albright syndrome through dedicated programs in research, education, awareness, and support. By funding significant research initiatives, such as those conducted in partnership with the University of Pennsylvania Orphan Disease Center and the Million Dollar Bike Ride program, the foundation advances the understanding of pain mechanisms and clinical aspects of the disease. In 2022, three important research projects were funded, focusing on issues critical to patients, including pain management and treatment responses.
The foundation's fundraising efforts, exemplified by raising over $161,000 in Spring 2023, directly bolster future research projects aimed at finding better management strategies and potential therapies for these conditions. These initiatives highlight the foundation's commitment to improving the quality of life for those affected by fibrous dysplasia and increasing awareness about the condition, thereby fostering a supportive community for patients and their families.
This information is meant to be a general summary of The Fibrous Dysplasia Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Investment Income: $134
- Gross Receipts: $282,768
Assets and Liabilities:
- Total Assets: $329,399
- Total Liabilities: $234,049
- Net Assets: $95,350
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Organization Details
Founding Year
2004
Phone
(301) 467-8979Principal Officer
Anne Corvelle
Main Address
BOX 1199 4701 SANGAMORE RD STE 100N, BETHESDA, MD, 20816
Website
www.fdmasalliance.orgNTEE Category
Code: G99 - Disease
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