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Angioma Alliance

Learn about this cause: What are the reviews? Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 020600697 ✦ Charlottesville, VA ✦ Designated as a 501(c)(3)

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Overview

What is Angioma Alliance?

Angioma Alliance is a nonprofit organization, headquartered in Charlottesville, Virginia, with a mission to assist individuals and families affected by Cerebral Cavernous Malformations (CCMs). They conduct educational conferences to disseminate information about the condition and facilitate improved diagnosis and management of the illness. The organization's activities extend beyond education, as they also advocate for research into a cure and prevention of CCMs. With a dedicated team of six employees, Angioma Alliance provides support to those affected, aiming to improve their quality of life.


Official website here: www.angiomaalliance.org

What are the reviews and ratings of this charity?

Charity Navigator Rating: 96% (Four-Star out of Four Star rating from Charity Navigator)

Angioma Alliance has achieved a commendable Four-Star rating from Charity Navigator, reflecting its high performance in accountability and finance. With an impressive score of 96% in this category, the organization demonstrates strong financial health and responsible management practices. Notably, it has a 100% independent board, ensuring a commitment to transparency and effective governance.

The organization excels in its program expense ratio, with nearly 85% of its expenses directed towards programs, indicating a strong focus on its mission and impact. Additionally, Angioma Alliance has received perfect scores in constituent feedback collection and usage, highlighting its dedication to engaging with and incorporating the voices of those it serves in its decision-making processes.

While the organization shows exceptional performance in most areas, it does have a slightly lower score in equity policies and processes, though it still maintains a solid overall rating in this category. Overall, Angioma Alliance is recognized for its effective operation, strong community engagement, and commitment to transparency and accountability.


This AI summary has been generated from information found on Charity Navigator.

Is Angioma Alliance legitimate?

Angioma Alliance is a legitimate nonprofit organization registered as a 501(c)(3) entity. Angioma Alliance submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.


Heare are some key statistics you may want to consider:

Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $542,907

For more financial information, click here


Official website here: www.angiomaalliance.org

What is the mission statement of Angioma Alliance?

The Angioma Alliance, dedicated to cerebral cavernous malformations (CCMs), aims to enlighten and support individuals impacted by this condition. Their mission is twofold: to enhance diagnosis and management of CCMs through education and support, and to stimulate research into finding a cure and preventing the disease. The organization conducts family and scientific conferences to disseminate relevant information about CCMs to those affected and their families.


Official website here: www.angiomaalliance.org

Who is the CEO of Angioma Alliance?

Cornelia Lee is the Principal Officer of Angioma Alliance. The CEO's salary of Angioma Alliance is $0 and their total compensation is $0.


Official website here: www.angiomaalliance.org

What is the revenue of Angioma Alliance?

Angioma Alliance's revenue in 2022 was $1,078,304.


Official website here: www.angiomaalliance.org

Who are the executives of Angioma Alliance and what are their salaries?

The average compensation at Angioma Alliance during 2022 was $90,484. There are 6 employees at Angioma Alliance.


Here are 12 key members and their salaries (Angioma Alliance's CEO's salary is $0 and their total compensation is $0):


Cornelia Lee Psyd (President & Ceo)
  • Compensation: $0
  • Related: $0
  • Other: $0
Karen Buck (Treasurer)
  • Compensation: $0
  • Related: $0
  • Other: $0
David Borland (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tim Gallegos (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Anthony Mayer (Chair)
  • Compensation: $0
  • Related: $0
  • Other: $0
Julia Demichiel (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Tyler Fairbank (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Rona Gomel Ashe (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kimberly Foley Md (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Kandance Weems Norris (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Dinah Winchester (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0
Amy L Akers (Chief Scientific Officer)
  • Compensation: $12,320
  • Related: $0
  • Other: $0


Official website here: www.angiomaalliance.org

Where can I find the form 990 for Angioma Alliance?

Angioma Alliance's most recent form 990 was submitted in 2022 and can be accessed here.


Official website here: www.angiomaalliance.org

Learn more at the official website: www.angiomaalliance.org

Mission Statement of Angioma Alliance

Angioma Alliance, a nonprofit organization, is committed to educating and supporting individuals affected by cerebral cavernous malformations (CCMs). Its mission is twofold: firstly, to facilitate improved diagnosis and management of the illness through educational resources and support. Secondly, Angioma Alliance advocates for research into a potential cure and the prevention of the disease. By conducting family and scientific conferences, the organization disseminates valuable information about CCMs to those affected and their families, aiming to enhance their understanding and coping strategies.

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Impact




July, 2024

Angioma Alliance's impact lies in informing and supporting individuals affected by cerebral cavernous malformations (CCM). Through their educational programs and support services, they empower those living with CCM to better understand and manage their condition. Additionally, by promoting research into a cure and prevention of CCM, Angioma Alliance is contributing to advancements in the field of vascular malformations. Their efforts ultimately aim to improve the quality of life for those impacted by CCM and pave the way for potential breakthroughs in treatment options for this disease.




This information is meant to be a general summary of Angioma Alliance. Please take the time to review official sources before making any decisions based upon the content provided here.


Financials

This financial information is from Propublica.

Revenue
$1,078,304 (2022)
Expenses
$800,162 (2022)
Efficiency

Other financial information:

This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $66
  • Gross Receipts: $1,173,899

Assets and Liabilities:

  • Total Assets: $1,215,381
  • Total Liabilities: $35,817
  • Net Assets: $1,179,564

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Organization Details

Founding Year

2002

Principal Officer

Cornelia Lee

Main Address

977 SEMINOLE TRAIL BOX 367, CHARLOTTESVILLE, VA, 22901

NTEE Category

Code: G80 - Disease

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