Overview
What is Fibromuscular Dysplasia Society Of America Inc?
The Fibromuscular Dysplasia Society of America Inc., commonly known as FMDSA, is a public health charity situated in North Olmsted, Ohio. With a team of three dedicated individuals, FMDSA is committed to enhancing the understanding and management of Fibromuscular Dysplasia (FMD), a condition affecting blood vessels in the body. Their efforts primarily involve raising awareness about FMD, supporting research activities, providing patient assistance, and educating both patients and healthcare professionals. In pursuit of this mission, FMDSA has established a patient registry, which has enrolled over 3,750 participants to date. This registry, now named The North American Registry for Fibromuscular Dysplasia, aims to identify patient characteristics, potential disease markers, and common imaging and treatment methods. Additionally, researchers have identified genetic variants, such as PHARCTR1, ATP281, LRP1, and LIMA1, that are linked to FMD. FMDSA's work extends beyond North America, with Ottawa Hospital in Ontario, Canada, recently joining as their first international center. This expansion underscores FMDSA's ongoing commitment to advancing the diagnosis and treatment of Fibromuscular Dysplasia.
Official website here: www.fmdsa.org
What are the reviews and ratings of this charity?
Charity Navigator Rating: 95% (Four-Star out of Four Stars)
The Fibromuscular Dysplasia Society of America Inc. (FMDSA) boasts a robust rating of 95% on Charity Navigator, highlighting its strong performance in accountability and financial health with a score of 97. The organization is governed by a fully independent board of seven members and has established several key policies, including those on conflicts of interest and whistleblower protections. With an impressive program expense ratio of 76.67%, the FMDSA effectively directs a significant portion of its resources towards its mission of supporting individuals affected by fibromuscular dysplasia (FMD).
User feedback reflects a deep appreciation for the FMDSA's role in providing vital information and support to patients diagnosed with FMD. Clients have expressed gratitude for the community and resources the organization has facilitated, allowing them to connect with others facing similar challenges. Many reviews highlight the educational materials, conferences, and expert guidance provided by the FMDSA as invaluable in navigating their diagnosis and treatment options.
However, some limitations noted include a need for continued outreach and education, as many patients initially encounter difficulties due to the rarity and complexity of FMD. While the organization has made significant strides in awareness and research, feedback suggests that ongoing efforts are necessary to ensure that medical professionals are well-informed about the condition. Overall, the FMDSA is celebrated for its commitment to advocacy, education, and community-building among patients with FMD.
This AI summary has been generated from information found on Charity Navigator and Great Nonprofits.
Is Fibromuscular Dysplasia Society Of America Inc legitimate?
Fibromuscular Dysplasia Society Of America Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Fibromuscular Dysplasia Society Of America Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Heare are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $2,375
Other Salaries and Wages: $71,008
For more financial information, click here
Official website here: www.fmdsa.org
What is the mission statement of Fibromuscular Dysplasia Society Of America Inc?
The Fibromuscular Dysplasia Society of America Inc, functioning as a public health charity, is dedicated to improving the diagnosis and treatment of Fibromuscular Dysplasia (FMD). They accomplish this objective by raising awareness about FMD, financing research activities, offering patient support, and educating both patients and the medical community. The organization's primary focus is on increasing understanding of FMD, identifying potential markers of the disease, and exploring commonly used imaging and treatment methods. In recent years, researchers have discovered genetic variants linked to FMD, such as PHARCTR1, ATP281, LRP1, and LIMA1. The society has also expanded its reach internationally, with Ottawa Hospital in Ontario, Canada, becoming its first international center.
Official website here: www.fmdsa.org
Who is the CEO of Fibromuscular Dysplasia Society Of America Inc?
Pamela Mace is the Executive Director of Fibromuscular Dysplasia Society Of America Inc.
Official website here: www.fmdsa.org
What is the revenue of Fibromuscular Dysplasia Society Of America Inc?
Fibromuscular Dysplasia Society Of America Inc's revenue in 2022 was $142,247.
Official website here: www.fmdsa.org
Who are the executives of Fibromuscular Dysplasia Society Of America Inc and what are their salaries?
The average compensation at Fibromuscular Dysplasia Society Of America Inc during 2022 was $23,669. There are 3 employees and 6 volunteers at Fibromuscular Dysplasia Society Of America Inc.
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Official website here: www.fmdsa.org
Where can I find the form 990 for Fibromuscular Dysplasia Society Of America Inc?
Fibromuscular Dysplasia Society Of America Inc's most recent form 990 was submitted in 2022 and can be accessed here.
Official website here: www.fmdsa.org
Learn more at the official website: www.fmdsa.org
Mission Statement of Fibromuscular Dysplasia Society Of America Inc
The Fibromuscular Dysplasia Society of America Inc, as a public health charity, is dedicated to improving the diagnosis and treatment of Fibromuscular Displasia (FMD). They achieve this mission by promoting awareness of the condition, funding research activities, offering patient support, and educating both patients and the healthcare community. By increasing understanding of FMD, identifying patient characteristics, and exploring potential markers of the disease, the organization aims to advance the field and improve the lives of those affected. Additionally, Fibromuscular Dysplasia Society of America Inc plays a crucial role in educating patients and healthcare professionals, fostering collaboration and knowledge sharing to enhance the quality of care for individuals with FMD.
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Impact
October, 2024
The Fibromuscular Dysplasia Society of America (FMDSA) significantly impacts the understanding and management of Fibromuscular Dysplasia (FMD) through a multifaceted approach. By raising awareness about FMD, the organization plays a crucial role in ensuring that both patients and healthcare providers recognize the symptoms and complexities of the condition.
FMDSA funds vital research activities, contributing to the advancement of knowledge surrounding FMD. Their patient registry, initiated in 2007, has amassed over 3,750 participants, facilitating research into the characteristics of FMD, potential disease markers, and treatment strategies. This registry is pivotal in identifying genetic variants linked to FMD, enhancing diagnoses and treatment options. Furthermore, with the expansion of their registry to include international participation, FMDSA is fostering global collaboration in FMD research.
Additionally, FMDSA offers essential patient support and education, empowering individuals affected by FMD with information and resources to navigate their health challenges. By focusing on awareness, research funding, and community education, FMDSA drives progress in the diagnosis and treatment of FMD, ultimately improving patient outcomes and quality of life.
This information is meant to be a general summary of Fibromuscular Dysplasia Society Of America Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Investment Income: $11
- Gross Receipts: $142,247
Assets and Liabilities:
- Total Assets: $175,125
- Total Liabilities: $2,634
- Net Assets: $172,491
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Organization Details
Founding Year
2003
Principal Officer
Pamela Mace
Main Address
26777 Lorain Road STE 311, North Olmsted, OH, 44070
Website
www.fmdsa.orgNTEE Category
Code: H90 - Medical research
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